A little over three weeks ago our world was turned upside down when we received devastating results of what we were expecting to be a "routine" MRI on our 5 year old MJ. Almost 4 weeks later - after multiple Neurology appointments and an additional MRI of the spine we are left with 2 new diagnosis to add to his current list of Asthma and Autism...
Chiari Malformation & Syringomyelia
Brain Surgery 2/28/2013
Even with our world turned upside down and uncertaintly ahead we are chosing to live faithfully and share MJ's story to inspire and encourage others. Below is a collection of blogs I have written and will continue to write so you can join us in our journey. Thank you so much for joining us - we need each and every one of you!
MRI Results 1/15/2013
Cry Out 1/16/2013
Chiari What? 1/17/2013
Chiari Kid Update 1/23/2013
Moment by moment 1/31/2013
Today is the day 2/1/2013
MRI #2 Results 2/7/2013
Words 2/19/2013
Flyin' High - NOT our last adventure 2/23/2013
Social Stories at work 2/26/2013
Magic of PCH 2/26/2013
Our day in (non-graphic) pictures 2/28/2013
Surgery day - We made it! 2/28/2013
Day 1 post surgery (Friday 3/1) – 3/2/2013
Day 2 post surgery (Saturday 3/2) - 3/3/2013
Day 3 Post Surgery (Sunday 3/3) - 3/5/2013
Day 4 (Monday 3/4/13) – The Power of Prayer - 3/6/2013
Home Sweet Home - 3/8/2013
MJ's Medical Fund 3/10/2013
Scars 3/16/2013
One Month Post Op Update 4/2/2013
One Step At A Time 4/3/2013
Greater 4/13/2013
90 days 6/4/2013
What is Chiari? 6/4/2013
What is Syringomyelia? 6/4/2013
Moments - Celebrating 2 years 2/28/2015
Day 4 (Monday 3/4/13) – The Power of Prayer - 3/6/2013
Home Sweet Home - 3/8/2013
MJ's Medical Fund 3/10/2013
Scars 3/16/2013
One Month Post Op Update 4/2/2013
One Step At A Time 4/3/2013
Greater 4/13/2013
90 days 6/4/2013
What is Chiari? 6/4/2013
What is Syringomyelia? 6/4/2013
Moments - Celebrating 2 years 2/28/2015
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