You know that feeling when you get really sick and feel like you got run over by a truck? Yeah well it goes without saying I think our little guy felt like he was pummeled by a freight train.
The first night post-op was a tough one (Thur night). From the time our visitors (grandparents) left in early evening long into the night the nurse was in and out constantly. The challenge of being a neuro patient – they have to check you at least once an hour to make sure all is well neurologically by checking your pupils and having you move your fingers and toes. He also had a hard time getting comfortable, and throwing up some more. The result – not much rest at all.
MJ has had a ton of struggles with neck movement and lots of pain today – typical for this surgery and one of the things that make the recovery so difficult. I was very grateful that they are keeping him on scheduled pain meds and not waiting for him to ask for them.
Day 1 challenges we faced:
- Move his neck around more (big challenge) – the PT described it as the worst morning stiff neck you have ever had x10,000.
- Eating and drinking - He tried 2 goldfish crackers and they didn’t stay down and he is refusing anything by mouth at this point.
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| MJ sitting up with PT a nd mommy by his side. |
Day 1 accomplishments:
- With lots of encouragement from mommy and PT he was able to sit on the edge of the bed for 1-2 minutes!! I never thought I could be so excited for my child to sit up again!
- He was moved out of the ICU to a regular room!
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| Moving out of ICU Fri night. We are going to miss our nurse Cathleen! |
Day 2 goals:
- Continue moving and stretching his neck to gain more range of motion.
- Eating and drinking.
- Sitting in a chair.
- Moving around to avoid lung atrophy.
Slow progress but good progress. Mommy and daddy are exhausted. We can only imagine what he is going through. Every ounce of energy we spend on him is absolutely worth it. Plug along little guy – it’s only gonna get better from here.
Praise God for progress!
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