Then through the entire process of getting MJ what he needed through 2013 (including an unrelated brain surgery) we faced the challenge of helping his younger brother JR who had regressed in speech and dramatic change in personality. We started seeing major regression in JR in spring of 2013 to the point where (like my feelings with MJ) - I felt there was something more going on.
In August of 2013…a year after his older brother was diagnosed with Autism and Hypotonia…JR was diagnosed with Speech Apraxia, Hypotonia, and At Risk for Autism. He has severe speech delay, social avoidance, melt downs, and sensory issues. So we began the journey with JR of evaluations and services.
I pretty much stopped blogging through the end of 2013 because we were so overwhelmed. I couldn’t find the peace or the purpose. I realized it was hard for me to see God in our circumstances because I hadn’t accepted our circumstances. I couldn’t accept that Autism was a part of our lives with both boys and we were now, and will always be a part of the Autism family.
So the last 6 months while I didn’t blog or get involved in many activities: Prayer, deep conversations with my husband Dan, and complete focus on God, the boys and our family unit is what I did. I have a ways to go to get to peace or celebration, but I am approaching acceptance.
So this Autism Awareness Day and April Autism Awareness month I take my first step to acceptance. This is a huge step for me, but with Dan by my side we decided we were going to “Light it up Blue” for our boys this year. And we will begin to seek out and take up more opportunities to be an active part of the Autism community.
Psalm
27:13 (NIV)
13 I remain confident of this:
I will see the goodness of the Lord
in the land of the living.
I will see the goodness of the Lord
in the land of the living.
